Researcher's labour of love leads to MS breakthrough

[don]

Re: Researcher's labour of love leads to MS breakthrough

My wife's cousin has MS. Will forward. Thanks Sapiens.

[tmicou]

Re: Researcher's labour of love leads to MS breakthrough

Great post! This could lead to significant help for many people.

Infections as a cause of toxicity have been brought up.

I'd like to interject the idea that it may not be the Infections themselves, but rather "the cure" that is the cause of much toxicity.

The most widely used class of new Antibiotics (in the past 10 years), the Flouroquinolones, which include Cipro (Ciprofloxin) Levaquin (Levofloxacin), Tequin, Penetrex, Maxaquin, Avelox, Noroxin, Floxin, Zagam, Factive, or any antibiotic whose name ends in *floxacin are potentially dangerous and toxic, and have significant numbers (10,000's) of documented cases of similar problems.

The FDA is yet another federal agency that has let us down.

For those who are interested, each of the following websites/papers are non-profit, non-advertizing, non-backed by pharma, information only "amature" websites. They've been dedicated to those who have suffered or are suffering from debilitating effects of these drugs. These sites are highly informative for anyone who may suspects that either an "infection" or the antibiotics they took may have caused them severe muscular, neurologic, vascular, or mental problems.

http://www.fqresearch.org/ftrf_about_us.htm
http://antibiotics.org/
http://antibiotics.org/resources/side-effects.pdf

The toxicity of these seemingly-inocuous, and often-prescribed drugs affects the entire body, and every organ in the body because of the vascular and neurologic effects they have.:eek:

[ThePythonicCow]

Re: Researcher's labour of love leads to MS breakthrough

I've been reading DogtorJ.com for the last day. He has another explanation for such chronic illnesses as MS, epilepsy, lupus, diabetes, many cancers, cardiovascular ... He sees various foods recently added to human consumption (wheat, cows milk, soy, corn) in large quantity (recently as in last few millenia) and even more recently added junk food, hydrogenated oils and excitotoxins such as MSG breaking down the digestive and immune systems, making way for a variety attacks on the body.

It's an elaborate hypothesis, and Dogtor J is a man of many words. My initial impression is quite favorable. He's making alot of sense to me.

[flintlock]

Re: Researcher's labour of love leads to MS breakthrough

Great post! This could lead to significant help for many people.

Infections as a cause of toxicity have been brought up.

I'd like to interject the idea that it may not be the Infections themselves, but rather "the cure" that is the cause of much toxicity.

The most widely used class of new Antibiotics (in the past 10 years), the Flouroquinolones, which include Cipro (Ciprofloxin) Levaquin (Levofloxacin), Tequin, Penetrex, Maxaquin, Avelox, Noroxin, Floxin, Zagam, Factive, or any antibiotic whose name ends in *floxacin are potentially dangerous and toxic, and have significant numbers (10,000's) of documented cases of similar problems.

The FDA is yet another federal agency that has let us down.

For those who are interested, each of the following websites/papers are non-profit, non-advertizing, non-backed by pharma, information only "amature" websites. They've been dedicated to those who have suffered or are suffering from debilitating effects of these drugs. These sites are highly informative for anyone who may suspects that either an "infection" or the antibiotics they took may have caused them severe muscular, neurologic, vascular, or mental problems.

http://www.fqresearch.org/ftrf_about_us.htm
http://antibiotics.org/
http://antibiotics.org/resources/side-effects.pdf

The toxicity of these seemingly-inocuous, and often-prescribed drugs affects the entire body, and every organ in the body because of the vascular and neurologic effects they have.:eek:

Avelox did a real number on my wife. Horrible side effects. Her doctor gave her some "free" samples. :rolleyes:

[flintlock]

Re: Researcher's labour of love leads to MS breakthrough

The connection between heavy metals in the brain and autoimmune diseases has been around for a long time - nice to see a doctor trying to do something about it.

People with autoimmune diseases have claimed results from using detox methods that remove heavy metals from the brain. - Google "MS detox heavy metals"

There are also people that claim to have helped MS through "Low Dose Naltrexone" as well as zillions other "cures"

http://www.lowdosenaltrexone.org/ldn_and_ai.htm

There are also people that claim intestinal infections as the culprit, ...

My personal opinion is that autoimmune disease results from a wide range of infections, toxins, ect.. yet we categorize the outcome: MS, Arthritis, ect.. rather then look for the cause of the disease.

In some case there could even be multiple triggers: heavy metals and an infection.

I believe there needs to be re-categorization based on which infection, toxins cause the specific autoimmune disease.

In order to cure a specific version of an autoimmune disease in today's world - you would need to have a full-time doctor focused 100% on getting to the root cause in your specific case and then once you find the cause, eliminate the problem and finanly re-set your immune system.

In other words:

a) find the underlying trigger: heavy metals, virus, bateria, other toxins, ..
b) eliminate the trigger
c) re-set your immune system (still unknown how to do this) or hope that you immune system is able to re-set itself naturally.

I would guess the cost to properly cure a chronic illness in our existing system is huge: $1 million per patient.

Of course the American Medical System is fundamentally not structured to solve chronic health problems because of

diagnos-prescribe model

vs.

test-investigate-test-investigate-test-.....-solve model.

I believe a mistake is being make in searching for a "single silver bullet" - that is a single cure.

The solution is in developing a "new process" to cure chronic disease one patient at a time.

Same conclusions I have come to.

[Rajiv]

Re: Researcher's labour of love leads to MS breakthrough

A Canadian Video news item in two parts

http://watch.ctv.ca/news/w5/the-liberation-treatment/

[mesyn191]

Re: Researcher's labour of love leads to MS breakthrough

The connection between heavy metals in the brain and autoimmune diseases has been around for a long time - nice to see a doctor trying to do something about it.

Iron isn't a heavy metal, at least not the sort you're thinking of (ie. lead, mercury, etc.). "Heavy metal" is a term with a different meaning in the medical field.

"Living organisms require varying amounts of "heavy metals." Iron, cobalt, copper, manganese, molybdenum, and zinc are required by humans.
...
In medical usage, heavy metals are loosely defined^[1] and include all toxic metals irrespective of their atomic weight: "heavy metal poisoning" can possibly include excessive amounts of iron, manganese, aluminium, mercury, or beryllium (the fourth lightest element) or such a semimetal as arsenic. This definition excludes bismuth, the heaviest of stable elements, because of its low toxicity."

a) find the underlying trigger: heavy metals, virus, bateria, other toxins, ..
b) eliminate the trigger
c) re-set your immune system (still unknown how to do this) or hope that you immune system is able to re-set itself naturally.

Immune systems themselves can be defective too you know, there is no cure for any genetic disease AFAIK (none for any viruses either ATM IIRC), nor will it be possible to cure them until you can modify the DNA of a human adult. We're probably decades away from this, assuming its possible at all.

Of course the American Medical System is fundamentally not structured to solve chronic health problems because of

diagnos-prescribe model

vs.

test-investigate-test-investigate-test-.....-solve model.

test-investigate-test-etc. is part of the diagnosis process. If anything we're too test happy ATM in the medical field, CYA and all that.

I believe a mistake is being make in searching for a "single silver bullet" - that is a single cure.

The solution is in developing a "new process" to cure chronic disease one patient at a time.

Maybe, maybe not, which is the whole point. Many diseases are still not well understood, some are still entirely mysteries, its not something that doctors/scientists are proud of but it is something they will usually readily admit to.

[kotadia]

Re: Researcher's labour of love leads to MS breakthrough

I wanted to update this thread with my personal experience with the "Liberation Procedure".
I am an 38 year old Indian American Male Diagnosed with MS in May 2003.
Before the procedure, i was having Balance, Gait issues, Dizziness, Pain.
I had my Venogram/Venoplasty performed on the 1st August 2011.
There was 80% blockage in my Left Jugular that was removed with Balloon Venoplasty. There was no blockage of the Right Jugular or the Azygos veins.
Almost immediately after the procedure, my balance had improved considerably - i am no longer running into things.
My legs have become warmer. The strength in my hands have improved.
I am able to walk > 0.5 miles without feeling fatigued / legs folding under me.
I still have some mild dizziness and some pain.
I have enrolled for Physiotherapy to try to undo the Muscular Atrophy in my right leg. Today was my first session with my personal trainer and i was able to exercise for about 45 minutes today - something that was impossible 3 weeks ago.
I feel very glad that i had this procedure.
My heartfelt thanks to Sapiens for having started this thread and to others for their very valuable contributions.

Thanks
Jagan

[DSpencer]

Re: Researcher's labour of love leads to MS breakthrough

I wanted to update this thread with my personal experience with the "Liberation Procedure".
I am an 38 year old Indian American Male Diagnosed with MS in May 2003.
Before the procedure, i was having Balance, Gait issues, Dizziness, Pain.
I had my Venogram/Venoplasty performed on the 1st August 2011.
There was 80% blockage in my Left Jugular that was removed with Balloon Venoplasty. There was no blockage of the Right Jugular or the Azygos veins.
Almost immediately after the procedure, my balance had improved considerably - i am no longer running into things.
My legs have become warmer. The strength in my hands have improved.
I am able to walk > 0.5 miles without feeling fatigued / legs folding under me.
I still have some mild dizziness and some pain.
I have enrolled for Physiotherapy to try to undo the Muscular Atrophy in my right leg. Today was my first session with my personal trainer and i was able to exercise for about 45 minutes today - something that was impossible 3 weeks ago.
I feel very glad that i had this procedure.
My heartfelt thanks to Sapiens for having started this thread and to others for their very valuable contributions.

Thanks
Jagan

Jagan,

Great to hear you are doing better. I'm impressed you thought to update this thread after nearly 2 years.

I work with 2 Interventional Radiologists who are participating in a clinical trial of this procedure (or at least the use of this procedure for treatment of MS). They just brought this up recently and I didn't realize this had been in the works for so long. It's encouraging to hear your story. I am curious: Did you talk to your Neurologist about this? What was their response?

Of course they need to be cautious when new research shows some promise, but I can't help but believe self preservation comes into play.

This is definitely true in some cases, such as new treatments. This is especially true in situations where the treatments are offered by a physician of a different specialty as the currently treating (with medication for example) physician. That is partly why I ask what the Neurologists response would be to this particular form of treatment. I am not sure how many Neurologists would also have the training to perform this procedure.

[kotadia]

Re: Researcher's labour of love leads to MS breakthrough

Spencer,
This thread was one of the primary motivators for me to investigate and opt-in for the procedure.
Getting here was a challenge though - my Neurologist was not very enthusiastic about this. My regular doctor was not even familiar with CCSVI and the "Liberation" procedure. So i ended up without much support.
So my thinking behind updating this thread, after having gone through the ordeal, was for me to share my experiences so others perusing this thread will have some information. I find i have succeeded in this - i have already received a couple of messages asking me for more information.
To anyone reading this, i will be more than happy to share my experience / information should you need it.

I have not yet met with my Neurologist after this Procedure - i am meeting him next month. I can update this thread after i meet with him and report on his assessment.

Life is Good.

[shiny!]

Re: Researcher's labour of love leads to MS breakthrough

Spencer,
This thread was one of the primary motivators for me to investigate and opt-in for the procedure.
Getting here was a challenge though - my Neurologist was not very enthusiastic about this. My regular doctor was not even familiar with CCSVI and the "Liberation" procedure. So i ended up without much support.
So my thinking behind updating this thread, after having gone through the ordeal, was for me to share my experiences so others perusing this thread will have some information. I find i have succeeded in this - i have already received a couple of messages asking me for more information.
To anyone reading this, i will be more than happy to share my experience / information should you need it.

I have not yet met with my Neurologist after this Procedure - i am meeting him next month. I can update this thread after i meet with him and report on his assessment.

Life is Good.

Please do give us an update. I am interested to know how your neurologist reacts to your improvement.

And... CONGRATULATIONS!

[brent217]

Re: Researcher's labour of love leads to MS breakthrough

I wanted to update this thread with my personal experience with the "Liberation Procedure".
I am an 38 year old Indian American Male Diagnosed with MS in May 2003.
Before the procedure, i was having Balance, Gait issues, Dizziness, Pain.
I had my Venogram/Venoplasty performed on the 1st August 2011.
There was 80% blockage in my Left Jugular that was removed with Balloon Venoplasty. There was no blockage of the Right Jugular or the Azygos veins.
Almost immediately after the procedure, my balance had improved considerably - i am no longer running into things.
My legs have become warmer. The strength in my hands have improved.
I am able to walk > 0.5 miles without feeling fatigued / legs folding under me.
I still have some mild dizziness and some pain.
I have enrolled for Physiotherapy to try to undo the Muscular Atrophy in my right leg. Today was my first session with my personal trainer and i was able to exercise for about 45 minutes today - something that was impossible 3 weeks ago.
I feel very glad that i had this procedure.
My heartfelt thanks to Sapiens for having started this thread and to others for their very valuable contributions.

Thanks
Jagan

Congratulations! I need to link this on my facebook this evening

[DSpencer]

Re: Researcher's labour of love leads to MS breakthrough

Spencer,


I have not yet met with my Neurologist after this Procedure - i am meeting him next month. I can update this thread after i meet with him and report on his assessment.

Life is Good.

Wish you the best and look forward to seeing this update.